Raise Funds for PAT

Welcome to the PAT Parent's Forum

WHAT WE WANT...

What we want for our children and families...

We want our children and our families to matter. We want a dedicated key-worker for every disabled child and we want all disabled children and their families to get the right services and support – no matter where they live.

What we want for our communities and schools...

We want our children to be included in every aspect of creating the kind of society they need BUT we also want to transform short sighted thinking that leads to one-size-fits-all services and amenities. We want an education system that meets the needs of each child and enables each one to fulfill their own full potential.

What we want from government...

We want commitment to quality of life and equality of opportunity for every child in the country. We want poverty amongst disabled children and their families to be cut by 50% by 2010 and eliminated by 2020.

What we want from Local Authorities...

We want local Councils to implement the Local Authority Charter for Disabled Children in full partnership with parents. We want each local authority department to hold themselves accountable to parents for the quality of the services they deliver for our families. We want complete transparency and accountability in the way that all services are planned, commissioned and delivered. We want these children's services to be delivered on the basis of best practice.

What we want from ourselves and for each other...

We want genuine partnership with the professionals who deliver services for our families that is based on respect and true equality.









WHAT WE DO....

The PAT parent drop-in is available from 09:00 to 12:00 on Mondays at 75 Seaforth Road, Seaforth, Liverpool, L21 3TX.

Advocacy appointments are also available by arrangement, telephone 0151 928 3507 or you can click here to email gardinerl@hotmail.co.uk

Local Action...

We represent parents and help to consult, mobilise, organise and advocate with parents and their families. PAT is also a member of the CVS Community Empowerment Network, Advocacy Forum and the Forum for Health and Social Care.

Regional Action...

We represent parents within regional networks to build action alliances, and to achieve our common objectives. Currently we are supporting the Cheshire and Merseyside Child Health Development Programme to introduce a GP Kitemarking scheme so that local GPs will work to common standards of care for disabled children. We have been lobbying MPs to support a common platform including the right to respite breaks for parents and carers and the right to a key worker for every disabled child.

National Action...

We represent local parents in national campaigns to improve the lives of parents and families and especially parents with disabled children. We are supporting the campaign to End Child Poverty. We also support the Every Disabled Child Matters coalition. The successful PAT letter writing campaign has resulted in both the Local Authority and NHS Primary Care Trust agreeing to adopt a Charter of principles for Children's Services.

News and Announcements

  1. Update on Young Carers Festival:

    The first two tickets allocated and funds have been pledged by sponsors on our PledgeBank to cover the cost.

    You can sponsor a young carer here:

    http://www.pledgebank.com/YCF2010

    Or you can donate to the bursary fund here:

    http://www.justgiving.com/National-Young-Carers-Festival

    Lets makes sure that the credit crunch doesn't stop us from sponsoring these amazing young people who work unpaid as sibling carers all the year round! You can also donate goods in kind; we need a mini-bus, sleeping bags and all sorts of other stuff. Send me a private message at gardinerl@hotmail.co.uk and let me know how you want to help.

    (Posted on 2010-03-13 18:17:00 by Larry Gardiner)

  2. Young Carers Festival 2010 25th-27th June at Fairthorne Manor

    Please visit our PledgeBank to sponsor a young carer for a fantastic weekend at YCF2010; click the link here: http://www.pledgebank.com/YCF2010

    Parent Advocates Together are delighted to publicly acknowledge generous support from our first sponsor Alan Bradley. Alan's transport business "ACCESS-A-BUS LTD" provides a safe and reliable daily service for disabled people on Merseyside. His family also run an exciting business called "PARTY FANTASIA" catering for parties, events, celebrations and special occasions; you can follow this link to find out more about our sponsor here: http://www.partyfantasia.co.uk/. We will be happy to post information about all our business and corporate sponsors on this page.

    Young Carers Festival is a weekend dedicated to Young Carers from all over the country... The Young Carers Festival is an annual event held especially for Young Carers. Every year, hundreds of acres of villages spring up, massive sound systems are installed, hundreds of tons of food and drink is delivered and we, build an entire radio station! Each year, the YCF has a theme. This year of course is no exception. The theme for YCF 11 is “Building Bridges.”

    (Posted on 2010-03-13 01:30:00 by Larry Gardiner)

  3. Update on previous post:

    Free SEN lecture in Liverpool will take place on Thursday18th March, 4-6pm at the Liverpool John Moores University Art & Design Academy, located behind Catholic Cathedral.

    For further information contact CERES Officer Emma FitzGerald - tel: 0151 231 5334 email: e.fitzgerald@ljmu.ac.uk

    or to book a place, please contact Conference and Event Services - tel: 0151 231 3668 email: professorials@ljmu.ac.uk

    (Posted on 2010-03-03 12:26:00 by Valerie)

  4. Posted on behalf of Time to Change, an organisation that challenges mental health stigma.

    Time to Change has some exciting plans for 2010, and we want you to be part of them!

    The next burst of campaign activity will launch in mid April. To link in with the campaign we will be updating our toolkit as well as producing a brand new 'Campaign in a box' that will include everything your organisation needs to run its own local campaign. This will be an ideal time to run your own local campaign activity - so make sure you get the date in your diaries and get planning.

    find out more about how you can get involved today.

    Get Moving week is set to be the biggest to date!

    Time to Change's Get Moving week (9 to 17October 2010) aims to involve over 80,000 people in activity events all over England.

    We are asking event organisers to think big this year. If you are planning to bring together people in your local area to get active for wellbeing, challenging mental health stigma and discrimination then we want to hear from you. Organising an event couldn't be simpler, and our updated toolkit will give you the tools, advice and materials you need to run with your ideas.- find out more about how you can get involved today. Go to the website for more information:

    http://www.time-to-change.org.uk/what-we-are-doing/our-campaign/new-plans-2010

    (Posted on 2010-03-03 12:20:00 by Valerie)

  5. FREE SEN LECTURE IN LIVERPOOL

    ‘Including Children with Special Educational Needs in Physical Education - Have we arrived at Utopia?’ by Professor Philip Vickerman Professor of Educational Research at LJMU, Faculty of Education, Community and Leisure.

    Philip Vickerman is Professor of Inclusive Education and Learning in the Faculty of Education, Community and Leisure. He is a National Teaching Fellow awarded by the Higher Education Academy and works nationally and internationally in the area of inclusive education with a particular focus on children with special educational needs. Philip has advised the Department for Children, Schools and Families on best practice strategies for inclusive physical education; as well as working with the Teacher Development Agency for Schools related to preparing trainee teachers to work with children with special educational needs. Philip has published widely in books and academic journals and is also the External Examiner for the first Erasmus Mundus Masters in Adapted Physical Activity which is a collaboration between four European countries.

    Professor Philip Vickerman’s Vision

    Philip is a strong advocate of personalised learning, consultation and empowerment of children with special educational needs. Central to his ethos is ensuring that all practitioners listen and truly hear the voices of children with particular reference to their experiences and opinions of physical education. Philip’s lecture will set out the history and context of special educational needs and how inclusive education has been transformed from one of segregation and discrimination to modern day approaches of placing children at the heart of learning and development.

    As part of this discussion Philip will share his research work on ‘official line agencies’ such as government and statutory agencies through to ‘professional opinion and practice’ outlining the views and experiences of trainee and qualified physical education teachers. He will conclude by posing a view from the ‘consumers’ by letting the children have their say on inclusive physical education and discussing whether we have now arrived at utopia in relation to equality for children with special educational needs.

    For further information contact Emma Fitzgerald, tel: 0151 231 5334, email: e.fitzgerald@ljmu.ac.uk or to book a place, please contact Conference and Event Services, tel: 0151 231 3668, email: professorials@ljmu.ac.uk

    (Posted on 2010-03-01 15:46:00 by Valerie)

  6. Contact a Family Finances Survey

    Finances can be a major concern for families with disabled children.

    In 2008 Contact a Family asked families about their finances and the results were shocking, with one in six families reporting that they were going without food and heating.

    Now, two years on, they would like to ask families about their finances again so that they are able to demonstrate if and how things have changed. There is a lot of talk that the economy has turned a corner and things are beginning to improve. But they would like to know what the experience of families with disabled children is.

    Counting the Costs 2010 - a Contact a Family survey of families with disabled children’s finances will help to raise awareness of the money worries specific to the families we support and to campaign for change.

    Srabani Sen, Chief Executive of Contact a Family, said: “In these recent turbulent economic times everyone has been struggling. But it costs three times more to raise a child with a disability and families with caring responsibilities have greater difficulty working, so are more likely to be living in poverty.

    ”Please take the time to fill out the short online survey, which will take no longer than five minutes to complete.”

    Counting the Costs 2010 survey: http://www.surveymonkey.com/s/T2S2ZZF

    (Posted on 2010-03-01 11:08:00 by Valerie)

  7. Together for Disabled Children

    A 2-day participation event for parents, carers and professionals is being run by Together for Disabled Children, a partnership between Contact a Family and Serco, set up to support the national implementation of the Aiming High programme for short breaks and parent participation.

    The venue is Liverpool Football Club (Anfield Stadium)

    Anfield Road (access via Walton Breck Road)

    Liverpool, L4 0TH

    Day 1 – 8th March 2010

    Sharing good practice and identifying barriers

    Day 2 – 17th March 2010

    Reaching shared perspectives, moving forward with a joint vision

    Day 1: A group of parents (morning) and professionals (afternoon) will draw out themes and discuss advantages, disadvantages, triumphs and pitfalls, hurdles, barriers and successes.

    Day 2: Information gleaned on day 1 will be collated and brought back for discussion with a mixed group of parents and professionals.

    From this TDC will produce a working document that has input from both parents and professionals involved in parent participation in the NW of England. This will inform best practice when parents and professionals work in partnership to make improvements to, or maintain services for disabled children.

    The outcome will be a grounded and realistic set of standards around parental participation and engagement with services - practical guidelines to aid successful current and future working relationships.

    It is important that you are able to attend both events, or send a deputy in your absence TDC we would like representatives from all NW authority areas to be involved and fully committed to the guiding principles that are produced.

    For more information, ot to book a place, please email Carolyn Deveney, Carolyn.deveney@cafamily.org.uk, or telephone 07905 917066.

    (Posted on 2010-03-01 10:58:00 by Valerie)

  8. Over 16's Disco this Friday

    Queen of Peace Hall, Litherland, Merseyside.

    Friday 19th February, 7pm till late.

    Buffet, bar, live act, disco, raffle.

    Tickets cost £4.

    This venue is accessible and has good changing facilities.

    (Posted on 2010-02-16 19:40:00 by Valerie)

  9. Small Steps Parent Support Group

    This group is based in Wallasey Village in the United Reformed Church. They meet every Friday At 10 - 12 (term time only). They are parent led and family focused and hoping to start going out on activities. They are looking for new parents and dont worry if you have little ones they can come along too.

    On Friday 26th they are hoping to have Angela Eagle coming along to the group to talk about our children and the difficulties we have with accessing services, so please come along and get your voice heard.

    Lets make Wirral better for our children

    The website link is

    http://www.smallstepsgroup.yolasite.com

    (Posted on 2010-02-12 17:41:00 by Valerie)

  10. Support Brokerage Training - 5 day course

    (24th &25th Feb, 24th Mar, 13th & 14th April)

    Aim: To equip learners with an understanding of brokerage, planning and legislation to enable and support people with disabilities to get a life of their choice.

    Cost per day: £45 small voluntary organisations, £25 individuals, FREE to people with disabilities and their families.

    Call 0151 430 2740 or go to www.livingnetwork.org.uk for more information.

    (Posted on 2010-02-08 18:56:00 by Jane)

  11. Free & Fun Wheelchair Mobility Course

    Wheelchair skills weekend for young wheelchair users

    Sat 27th February (9.30am-3pm Please bring a packed lunch)

    & Sun 28th February (9.30am-1.30pm)

    Broadgreen International School,

    Queens Drive, Liverpool, L13 5UQ

    Tel 01482 887163 to reserve a place.

    www.go-kids-go.org.uk

    (Posted on 2010-02-08 18:43:00 by Valerie)

  12. Time to Challenge project

    Time to Change launched a new element of the Time to Challenge project aimed at confronting the stigma and discrimination faced by people with experience of mental health problems in the workplace.

    For more information, go to:

    http://www.time-to-change.org.uk/what-we-are-doing/time-challenge/new-section/employers

    (Posted on 2010-02-08 17:29:00 by Valerie)

  13. Beat (Eating Disorders Charity) National campaign day - February 26th

    Beat Manifesto - due to be published on the 22nd February - calls for the next government to deliver real change for people affected by eating disorders. It calls for improvements in primary care, as well as for specialist services to be made available for all. It calls on us all to challenge stigma - and campaign for the truth about eating disorders.

    We're calling on beat supporters and supporters take the manifesto to their MP's surgery.

    If you would like to join our campaign, sign up at the beat website to receive your free campaign pack. The pack will contain your copy of the manifesto - as well as a guide on writing to your MP or local paper.

    We hope you will join us on this campaign - and help us beat eating disorders.

    http://www.b-eat.co.uk/Events/beat21/Requestacampaignpack

    (Posted on 2010-02-08 11:54:00 by Valerie)

  14. Congratualtions to Care and Share Support Group.

    They succeeded in gaining £2,500 to set up a friendship/sibling club. For more information, go along to the next meeting on Friday 5th February.

    (Posted on 2010-01-29 17:22:00 by Valerie)

  15. The next Care and Share Support Group will take place on Friday 5th Feb at 7pm, Upton Victory Hall, Salacre Lane, Upton, Wirral. Guest speaker is Councillor Sheila Clarke - the Carers Champion.

    (Posted on 2010-01-27 10:44:00 by Valerie)

  16. Tight Ropes and Safety Nets: Supporting Young Suicidal Men

    Friday 12th March 2010 arch 2010 from10am - 4pm

    (registration and coffee from 9.30am)

    Booking Deadline: Wednesday 3rd March 2010

    The Liner Hotel

    Lord Nelson Street

    Liverpool L3 5QB

    Speaker : Dr Andrew Reeves

    Contributors: Dr Janine Griffiths and Ian Wright (Early Intervention Team in Liverpool, Sefton and Kirby), Simon Howes (C.A.L.M.), Angela Samata (Survivors of Bereavement by Suicide)

    Working with and supporting people who are suicidal, particularly young men, can be one of the most difficult personal and professional challenges for any helping professional. Having the confidence to name suicide and therefore help the person explore their own suicidality and its meaning can take us all into precarious territory; the fear and cost of ‘getting it wrong’ can be profound.

    The conference will also be considering questions such as:

    *How do we empower people to contact those who can offer help before it is too late?

    *How does a suicide affect the wider family and how do we best help those left behind?

    *What are some of the reasons behind why suicide is an issue amongst young men in the UK?

    The fee for the conference is £50.00 per person, including lunch, or £25.00 for the voluntary/charity sector. Cheques should be made payable to COMPASS.

    To book your place please download the booking form (see link below) and return it with your payment to:

    Pamela Sharp

    COMPASS

    25 Hope Street

    Liverpool L1 9BQ

    Tel: 0151 708 6688

    pamelasharp@compass-counselling.org.uk

    www.compass-counselling.org.uk

    (Posted on 2010-01-26 17:37:00 by Larry)

  17. Free Computers for low income families

    Home Access is a government drive which will help low-income families to get access to a computer and the internet to get online at home.

    If you are a low income family in receipt of certain benefits you could qualify for a grant to buy a computer and/or a minimum of one years’ internet access. The programme is aimed at those that need it most and targets families that do not have access to a computer or the internet at home.

    Depending on what you need, the grant allows eligible applicants to buy one of the following packages:

    1. Full package (a computer, one year's internet access, service and support) 2. A computer with service and support only 3. One year's internet access only

    If you would like to know more use the following link

    http://www.homeaccess.org.uk/

    (Posted on 2010-01-18 12:55:00 by Valerie)

  18. Parents Forum Meeting in Sefton

    The next Parents Forum meeting is on Monday 25th January 2010 at Parenting 2000, Mornington Road, Southport in the Alchemy building. 9.45am-1.00pm

    All parents/carers are welcome to attend.

    (Posted on 2010-01-18 12:53:00 by Valerie)

  19. Radio Show for Carers

    Who Cares? is a one off radio show with me, Cathy Taylor, this Friday afternoon. Tune into KVFM 87.7fm, live from McDonalds Restaurant Kensington, Liverpool.

    Contact us with your questions or opinions live on air.

    Blog: www.kvfm.wordpress.com

    Email: kvfm2009@yahoo.co.uk

    Text in: 075 320 31046

    (Posted on 2009-12-15 16:10:00 by Cathy)

  20. The National Autistic Society Trafford Teenage Programme

    The programme, which runs for 3 sessions, is for parents/carers of children aged between 13 and 18 years and who have received a diagnosis of an autism spectrum disorder (ASD) within the last 18 months.

    help! provides support for parents and carers of school aged children, young people and adults who have a recent diagnosis of an ASD.

    The programme sessions cover:

    •What are autism spectrum disorders – a brief overview

    •Top tips for communication and interaction

    •Practical strategies for education, educational rights/law and transitions

    •Accessing support services and benefits

    •Approaching behaviour difficulties

    •Puberty and relationships

    Dates of sessions:

    1. Mon 25th January 2010 9.30am - 2.30pm

    2. Tues 26th January 2010 9.30am - 2.30pm

    3. Tues 2nd February 2010 9.30am - 2.30pm

    Venue:

    St John Vianney School

    Rye Bank Road,

    Firswood, Stretford,

    Manchester

    M16 0EX.

    To book a place on this programme please complete & return the help! application form.

    For any questions or to obtain an application form please contact:

    Sonya Orman or Joanna Kowalik on 0161 946 1193

    (Posted on 2009-12-15 15:41:00 by Valerie)

  21. DLA

    The petition to save Disability Living Allowance ends on Monday 7th December....please sign the petition

    http://petitions.number10.gov.uk/AttendanceA/

    (Posted on 2009-12-07 10:19:00 by Valerie)

  22. Race Night in aid of Care & Share Support Group (ASD)

    Race night will be in the Coach and Horses pub in Moreton on Sunday 22nd November, starting at 6pm prompt. If you are coming please arrive at 5.30 pm.

    We will be providing a FREE curry, so if you are sure you will be able to attend, please confirm by emailing Lisa at Thecloudbuster@aol.com

    Your support will be greatly appreciated .

    (Posted on 2009-11-19 10:11:00 by Valerie)

  23. Carers Rights Day, Friday, December 4TH, 2007

    Christ Church, Lord Street, Southport, PR8 1AA , 10 - 3

    The focus of this years Carers Rights Day is on Caring for your income and pension. Carers UK have produced a booklet: Looking After Someone? – A guide to carers’ rights and benefits which provides specialist advice to carers.

    Carers can order free copies from Carers UK by calling 0845 241 9379 or by visiting www.carersuk.org or emailing carersrightsday@carersuk.org

    (Posted on 2009-11-16 15:57:00 by Jane)

  24. AuKids - a positive parenting magazine aimed at families of children with autistic spectrum conditions. Feedback from parents who receive the magazine has been very positive and it's been encouraging to hear that AuKids supports parents with ideas and advice as well as sharing personal stories.

    The magazine is now available by subscription at £10 per year for 4 issues of AuKids delivered to your door. Alternatvely as from next issue you can download 4 issues for £8 per year. The current issue and past issues can be viewed for free online at www.aukids.co.uk.


    (Posted on 2009-10-27 15:39:00 by Valerie)

  25. Fantastic News ....

    An outcome of the Eating Disorders Conference held in Liverpool last month is that 2 specialist beds will be funded at Alder Hey childrens hospital. Congratualtions to everyone involved.

    (Posted on 2009-10-02 14:50:00 by Valerie)

  26. Eating Disorders Conference:

    An inspiring Conference took place in Liverpool on 7th September, where carers and parents were given a prominent voice. A key issue that emerged from the day, was the lack of clear pathways for treatment and support - so we are working on this now. Watch this space ...

    (Posted on 2009-09-23 08:51:00 by Valerie)

  27. Care & Share Support Group - Autistic Spectrum Conditions

    My aim is to set up a Wirral based fortnightly supportive group for parent/carers, create a sibling support group, and I am currently helping to facilitate and launch a ‘self help’ support group for persons aged 16+ who have a diagnosis of Asperger’s and welcome any other suggestions you feel would be useful e.g resource library, social skills training.

    For further information, email Lisa at Thecloudbuster@aol.com.

    (Posted on 2009-08-26 15:03:00 by Lisa)

  28. Child Trust Fund for Disabled Children

    From 2010, the government will contribute £100 every year to the Child Trust Fund accounts of disabled children, with severely disabled children receiving £200 per year. To benefit from these payments, a child must receive Disability Living Allowance (DLA) and have been born on or after 1st September 2002. The first payments are due in April 2010 for those in receipt of DLA at any point in 2009-10. Claim now!

    (Posted on 2009-08-26 14:53:00 by Valerie)

  29. Has your child’s DLA has been suspended after a stay in hospital?

    Contact a Family thinks this is wrong and they are gathering evidence from families about the effect of this benefits rule, to highlight the issue and push for change

    If this has happened to you, please get in touch. They would like to gather as much evidence as possible to highlight this issue and encourage change in the regulations.

    Tel: Elaine Bennett on 020 7608 8741 or e-mail:

    elaine.bennett@cafamily.org.uk


    (Posted on 2009-08-26 14:49:00 by Valerie)

  30. Hi all

    Gerry Flanagan LD Commisioning Manager based at St Cath's Hospital is doing two pieces of work around Autism which corresponds with a Department of Health consultation which can be found on The Wirral Autistic Society website.

    He is currently:

    1)Carrying out a needs assessment and gap analysis.

    2) Co-ordinating Wirrals response to the DH consultation.

    The Consultation doc is reviewing how Autism Spectrum Conditions are treated in 5 key areas to enhance quality of life and support. There are examples of good practice throughout the country too.

    This is a great opportunity to highlight key gaps in support for those with Asperger's/ASD conditions but the responses need to be in by Septmber 15th. I was unaware of this document until now so urge everyone to take a look and respond.

    Great news - The 2nd meeting of Connect self help support group for adults aged 16+ with Aspergers went really well and we are currently planning a walking group and trips out. It is held every Saturday between 2-4pm at The Fountain Project (Wirral Mind) Chester Street, Birkenhead.

    Please let friends/family/partners who care for someone with ASD/Asperger's know about the support groups and the consultation document. Thank you.

    regards

    Lisa

    Care and Share support group

    (Posted on 2009-08-17 10:51:00 by Lisa)

  31. Disability benefits may be under threat - act now

    A government green paper has revealed proposals to stop paying disability benefits, for example attendance allowance and DLA, and to pay the money directly to social services instead.

    Under the plan, current claimants would have their disability benefits converted to a personal budget administered by local authorities and used to pay for services not to spend as they wish.

    Once the green paper consultation period ends in 100 days time, if an almighty row has not been raised, it is likely that both major political parties will see the lack of outrage as a green light to end both DLA and AA.

    We looking for a minimum of 1,000 claimants, carers and support workers to join the 'benefits and work' campaign to save these benefits from being abolished.

    Find out how you can take part from this link:

    www.benefitsandwork.co.uk/disability-living-allowance-(dla)/dla-aa-cuts

    (Posted on 2009-08-07 09:45:00 by Valerie)

  32. Autism friendly cinema screenings.

    FACT in Liverpool City Centre (http://www.fact.co.uk/ 151 7074450) and the Plaza in Crosby (http://www.plazacinema.org.uk/ 0151 474 4076) offer autism friendly screenings. Contact them directly for more information.

    (Posted on 2009-08-03 14:18:00 by Valerie)

  33. There will be a free play day event on Wednesday 5th August in North Park, Bootle (1-3pm) to deliver inclusive sports and games (DAISY UK - Disability Awareness Introducing Sport to Youngsters)

    All welcome, please come along

    (Posted on 2009-08-03 10:21:00 by Valerie)

  34. Survey Request

    Dear Parents and Advocates Forum Admin

    I wonder if you would be so kind as to post a message or link on your forum (I was unsure if it was suitable for me to do so) requesting carers to complete and return our disabled homes survey. We really want to know what disabled people need and want in new build homes.

    In appreciation of their help, we have a list of e-books on site, and each person who returns the survey can choose a free ebook to be emailed to them. Any ideas or suggestion sent by email to us without completing the survey may also gain the sender a free ebook.

    Please have a look and if you think you can pass this on to carers who would be willing to help us I would appreciate it. The website link for the survey is http://www.freedomhomescyprus.com/survey.html

    Kind regards,

    Linda

    (Posted on 2009-07-18 15:38:00 by Larry Gardiner)

  35. Learning Disability Week will take place from Monday 22 to Sunday 28 June 2009. World Museum Liverpool is celebrating Learning Disability Week with a series of FREE events. All events will take place at the Treasure House Theatre, World Museum Liverpool.

    Film My Crazy Life - Changing Reuben Monday 22nd June 2.30-3pm Reuben Walsh has Aspergers syndrome, an IQ of 154, and an obsession for neurology. For the first 12 years of his life, no one knew why he was different until he was correctly diagnosed. This programme follows Reuben's every day life and the challenges he faces along the way.

    Film Coping Strategies Monday 22nd June 3.30-4pm Shahid, fed up by the tag 'learning disabled' leaves his doting mother for the allure of love, life and freedom in an independent home.

    However, the fast of Ramadan, his disruptive flat-mates and the mysterious Paris Stilton drive Shahid to distraction.

    Film Being Different May Be Cool! Tuesday 23rd June 1.45-2.15pm This programme presents an honest account of life with autism from the perspective of three brothers, Luke, Joe and Ben Jackson, all of whom have the disorder. Their mother Jacqui is outspoken and articulate about how teachers can support pupils with autism.

    Film Heavy Load (Winner of Audience Award - Britdoc '08) Thursday 25th June 2.30-4pm Suitable for ages 12+ Heavy Load are Brighton's answer to The Ramones. This documentary follows the group of rockers as they try for total world domination! The group which has members with and without learning disabilities are up for the challenge and this film charts two years in their lives as they strive out of disability club nights and head for the mainstream!

    All film events require free tickets that can be collected on the day from the Information desk at World Museum Liverpool, William Brown Street, Liverpool, L3 8EN. For more details of any of these events please call Alex Shears on 0151 478 4456 or Louise Cooney on 0151 478

    4341

    (Posted on 2009-06-15 09:09:00 by Valerie)

  36. Response from Number 10 - Thank You for Your Support

    Dear friends,

    We asked our friends and supporters of Parent Advocates Together to sign a petition asking the Prime Minister to "Change the existing law and allow carers to claim carer's allowance whilst in full-time education." The Prime Minister's Office has responded to that petition and you can view it here:

    http://www.number10.gov.uk/Page19611

    We also asked local MP's to support a parliamentary process called an Early Day Motion; all our MP's have now signed it. Thank you to all those supporters who have written to their MP or signed this online petition.

    (Posted on 2009-06-12 14:23:00 by Larry Gardiner)

  37. VOTE FOR A CHANGE - http://www.voteforachange.co.uk/

    Open Letter to the Prime Minister

    The neighbourhood where I live has among the highest indices for multiple deprivation in the UK. The contituency where I live is one of the safest seats in the UK. Elected members in our local authority are either fighting amongst themselves or fast asleep. Salried officers in the local government and statutory agencies working for us are not held accountable. Our elected representatives are not held accountable. Parents, carers and families with disabled dependents are ignored, bullied or silenced. Very little of the nation’s resources trickle down to the neighbourhood where I live. People where I live die between five and eight years earlier than people who live just five miles away. People who are disabled or who have a disabled dependent have even more pronounced health inequality issues.

    We want a Bill of Rights, a written Constitution. Proportional Representation, an elected Second Chamber, parliamentary reform and effective methods to effectively hold our public servants and our elected represntitives accountable for outcomes. We want outcomes measured not just activities!

    Larry Whybrow-Gardiner - Parent Advocates Together

    (Posted on 2009-06-11 15:40:00 by Larry Gardiner)

  38. Letter from PAT to Joe Benton MP - Write to your MP now!

    We have written to our MP. Click this link to find out how you can send an important message to parliament about the election of a principled and a reforming Speaker.

    http://www.mysociety.org/2009/05/21/3-principles-we-are-asking-speaker-candidates-to-endorse-you-can-help-right-now/

    Dear Joe Benton,

    I am writing to you as a constituent and as a trustee for Parent Advocates Together which is a support group for families based in Seaforth, one of the most deprived wards in your constituency...

    ...I am asking you to vote for a candidate (for Speaker) who is most likely to be able to mobilise and organise renewal, reform, accountability and transparency...

    ...I would like to thank you for your previous support for Early Day Motions and for representing our views at Westminster...

    Yours sincerely,

    Laurence John Gardiner - Parent Advocates Together

    (Posted on 2009-05-22 14:06:00 by Larry Gardiner)

  39. For all families with a disabled child, “SPLASHABILITY” at DUNES SPLASHWORLD, SOUTHPORT.

    A family session for all disabled children and their families is being held on:- TUESDAY, 12TH MAY, 2009, 6.30 p.m. – 8.30 p.m.

    Cost: £3.50 per person, Plus 1 Carer gets in free.

    (Posted on 2009-05-06 08:46:00 by Valerie)

  40. Action4Advocacy: A one day course exploring Effective Communication - 20th May 2009

    The course is suitable for advocates, anyone speaking up for or on behalf of another person and managers of advocacy schemes. By attending this course participants will:

    Understand the barriers to effective communication

    Gain a greater understanding of the importance of effective communication

    Explore the different ways in which we communicate and how to choose the most appropriate method

    Learn how to advocate effectively for people with limited communication abilities

    Date: Wednesday 20th May - Location: York

    http://www.actionforadvocacy.org.uk/articleServlet?action=display&article=1601&articletype=38

    (Posted on 2009-05-05 18:21:00 by Larry Gardiner)

  41. Liverpool Day of Celebration for Adult Learners’ Week

    Saturday 9th May 2009 11:00am—3:00pm at World Museum Liverpool.

    Whether you’re interested in starting a new hobby, improving job prospects or simply keeping your mind active, why not call in for

    FREE and see how learning can improve your health and well being!

    • Get creative and visit our community arts exhibition

    • Find out about the vast range of learning opportunities in

    Merseyside, ranging from short, bite size courses to

    degrees at college or university

    • Try out a range of activities from African Dance to Holistic

    and Complementary Therapies

    (Posted on 2009-05-05 18:14:00 by Larry Gardiner)

  42. WHAT WORKS? WHAT DOESN'T WORK SO WELL?

    I'm a freelance journalist specialising in education and write features various national newspapers and magazines, mainly the Guardian. I'm always on the lookout for stories to pitch to education editors and have had some brilliant leads/stories here. Do get in touch if you have any stories which may be of interest...

    WHAT WORKS? Anything fresh, original and/or unexpected e.g. an innovative new project, a fresh approach to an age old problem, an inspired idea which targets a particular group of people. And anything which is current/topical (but ties into news/new research rather than perceived trends).

    WHAT DOESN'T WORK SO WELL: It's more difficult to interest national features editors in stories about products, websites, teaching resources, conferences, one off events, (unless there is something REALLY unusual), stories about projects that aren't up and running yet (there needs to be some kind of 'history', at least a few months usually), stories about one school/setting (unless there really is an interesting story to tell), - stories which celebrate the commonplace e.g. a school with great exam results, a children's centre holding a fundraising event, a school doing an international exchange, a group

    of students doing some volunteer work. There are always exceptions, but these tend to be local stories.

    Anyway do drop me a line if you have an ideas. A few lines describing the story is much easier than pdfs and web links. Thanks as always for your ideas. I try to reply to all, although it does take me a bit of time.

    Follow my updates on Twitter: jan_murray or contact me by e-mail at mailto:janmurray@journobiz.com

    Jan Murray - www.janmurray.co.uk

    (Posted on 2009-04-28 14:20:00 by Jan Murray)

  43. Eating Disorders Carers Conference

    Talking Eating Disorders is hosting a 1 day carers conference at Liverpool John Moores University on 7th September. This conference is suitable for carers and parents of people with eating disorders, and for professionals working in the field.

    Speakers include service users and professionals and academics working with eating disorders. Workshops are also planned to provide carers with practical help.

    For more information, contact Valerie at v.j.todd@ljmu.ac.uk

    (Posted on 2009-04-28 11:49:00 by Valerie)

  44. Free Parent Information Days, new dates announced

    Dates for Parents information days for May have been announced

    29th April 2009

    St. Ann's Special School

    Hanwell, Ealing

    7th May 2009

    Leicestershire

    Coalville

    7th May 2009

    Frederick Holmes School

    Hull

    14th May 2009

    Derbyshire

    Derby or Chesterfield

    15th May 2009

    Lindens Primary School

    Sutton Coldfield

    15th June 2009

    Bristol Sensory Support Service

    Westbury on Trym, Bristol

    If you are a parent of a child with a disability or special educational needs and would like to attand one of these events, please contact our advice and information service on 0800 269545 or enquiries@abilitynet.org.uk. If there is no event planned in your area you can still contact us and ask to be put on the waiting list and to be informed of forthcoming events when they are arranged. Check out Abilitynet podcast http://www.abilitynet.org.uk/podcast/

    (Posted on 2009-04-27 13:07:00 by Larry Gardiner)

  45. Adult social care law is in urgent need of reform

    That, at least, is the conclusion of the Law Commission (LC), which is currently in the middle of a systematic review. Please see Weightmans LLP legal update.

    Direct payments http://snipurl.com/gtmmo

    (Posted on 2009-04-27 09:42:00 by Larry Gardiner)

  46. Dear Larry,

    Thanks to the efforts of Oxfam supporters up and down the UK, the government announced in Wednesday’s budget that it would stick to the aid commitments it made in its last spending review. This is fantastic news for people in developing countries!

    Cuts of around £700 million were on the table. But, after Oxfam broke the story, and you sprung into action, we stopped the cuts from going through. This money will go towards providing people with the life-saving medicines they so urgently need. It will help children receive an education when they otherwise wouldn't have done. It will help make sure more mothers have access to free health care, and dramatically improve their chances of surviving childbirth.

    Read the story in full and leave a comment on our blog. Share this story with your friends on Facebook. Or spread the word on Twitter. It all began seven days ago; when Oxfam got wind that the Chancellor was preparing to cut aid spending for the next two years. Straight away, a plan was formed. Hundreds of Oxfam activists jumped into action and raised the issue with the Chancellor and the Prime Minister.

    The announcement also sends out a clear and strong message to our European partners: in times of hardship, whether in rich or poor nations, it’s the poorest people who suffer first, and that hard times are no excuse for not helping those who need it most. But there's one thing that we want to get clear – you made this happen. You made this happen with every email that you sent, with every letter that you wrote, with every visit you made to your MP.

    So, after you’ve dusted yourself down, and given yourself a well-deserved pat on the back, it’s on to the next challenge. Oxfam has just launched its new climate change campaign. And you can get involved here.

    Thank you,

    Martin Kirk

    Head of UK Campaigns

    (Posted on 2009-04-25 13:35:00 by Martin Kirk)

  47. EDCM News: Short breaks report launched as half of all English local authorities support EDCM

    Dear Larry

    EDCM has today launched a report looking at the impact of the 'Aiming High for Disabled Children' (AHDC) short breaks programme on the lives of disabled children and their families.

    The Short breaks tracking Interim Report gives a snapshot of parents’ experiences of short breaks, and highlights examples of good practice and areas of concern. EDCM will be using the report as a campaigning tool to push for proper evaluation of the AHDC programme and further investment for disabled children’s services from the next government Spending Review.

    To download the report and campaign for improved short breaks in your local authority, go to www.edcm.org.uk/shortbreaks

    (Posted on 2009-04-18 08:33:00 by Pamela Shaw)

  48. Please Sign this Petition: http://petitions.number10.gov.uk/TellItRight/

    After diagnosis of a condition such as Down’s syndrome, parents need high quality information. Accurate and up-to-date information and support should by law be available to parents when a condition is diagnosed prenatally or postnatally. This should include:

    - Up-to-date, evidence-based, written information concerning the range of outcomes for individuals living with the diagnosed condition, including physical, developmental, educational, and psychosocial outcomes.

    - Contact information regarding support services, including information hotlines specific to Down’s syndrome or other prenatally or postnatally diagnosed conditions, resource centres, national and local peer support groups, and other education and support programmes.

    Let's send a clear message to the Government: we want better information!

    (Posted on 2009-04-16 09:38:00 by Larry Gardiner)

  49. Prevention & Early Intervention: Improving Access to Mental Health Services for children & Young People - the Liverpool Experience.

    Study Day

    10.00-4.00pm, 30th April 2009

    Conference Centre, Thorn Cross Young Offenders' Institution, Arley Road, Appleton Thorn, Warrington, Cheshire, WA4 7RL

    This is the second of four workshops/study days for the Cheshire and Merseyside CAMHS Stakeholder Network (n.b. these Workshops are open to all from across the North West).

    To register for this free event, please contact elaine.asquith@barnardos.org.uk and request a a registration form.

    This information was kindly provided by Geraldine Murphy from Knowslry NHS.

    (Posted on 2009-04-15 15:16:00 by Valerie)

  50. Talking Eating Disorders – Easter Evening Fundraiser

    The effects of Eating Disorders on sufferers and their friends and families can be alarming and severe. We provide information and support to anyone affected by Eating Disorders on Merseyside. We have been supporting carers and sufferers on Merseyside for 9 years, providing telephone support and monthly meetings. We are a voluntary organisation, and rely solely on donations to support the work we do. All our work is undertaken by volunteers. We are affiliated to BEAT, the UK’s largest organisation supporting people affected by eating disorders.

    You are invited to our Easter Evening on Thursday 16th April at The Casbah Coffee Club, 8 Haymans Green, West Derby, Liverpool, L12 7JG, 7pm onwards.

    The Casbah Coffee Club is located within a Grade 11 listed building in West Derby, and is a Beatles Tourist Attraction. Please see www.casbahcoffeeclub.com for details of how to find us.

    This is a relaxed, informal evening with an opportunity to chat, mingle and make new friends. Bring something to drink, and food to share if you want to. We would ask for a donation (whatever you wish to donate) on entry. We hope to see you there! For more details, contact Leigh Best on 07974796990.

    (Posted on 2009-04-14 10:30:00 by Valerie)

  51. UN Convention on Rights of Persons with Disabilities

    You signed a petition asking the Prime Minister to ratify the UN Convention on Rights of Persons with Disabilities with the inclusion of this Governments need for reservations to its Article 24 Education.

    The Prime Minister's Office has responded to that petition and you can view it here: http://www.number10.gov.uk/Page18528

    "The Government is committed to continuing to develop an inclusive education system, which it sees as entailing a range of provision to address children’s special educational needs, including mainstream and special schools. The Government also acknowledges that some children’s needs are best met by specialist provision, which, particularly in rural areas, can be some distance from their home. In addition, the Government does not want to remove parents’ right to express a preference for a special school place during the statutory assessment process. Within this range of provision, mainstream schools work collaboratively with local authorities’ support services and special schools, to meet the wide spectrum of special needs. The Government is currently considering how the convention should be ratified to best reflect the Government’s commitment to inclusion of disabled people."

    (Posted on 2009-03-19 09:40:00 by 10 Downing Street)

  52. Qualifications in Independent Advocacy

    South of England Advocacy Projects and Kate Mercer Training are delighted to hear that the long awaited Certificate and Diploma in Independent Advocacy have been formally approved by The Qualifications & Curriculum Authority (QCA), and to signpost you to our new and improved Advocacy Training website. The new qualifications, accredited by City and Guilds, will help ensure that people who use advocacy services continue to receive the highest quality service possible, and will contribute towards consistency within advocacy across England and Wales. It is likely that Commissioners of advocacy services will increasingly expect providers to be able to evidence that their staff have, or are working towards, the qualifications.

    Drawing on their vast experience and solid reputations in the advocacy field, South of England Advocacy Projects and Kate Mercer Training have formed a joint enterprise to become one of the providers available to support you through your journey in achieving the qualification. By choosing us as your training provider you can expect:-

    Support from qualified assessors;

    2 tutors delivering the taught sessions which accompany the qualification;

    Service user involvement – particularly within taught sessions;

    Individual training material;

    On the job assessment;

    Registration and final certification from City and Guilds;

    Support from registration to completion;

    Relevant and practice based training;

    Acknowledgement and development of your expertise and skill set.

    These City & Guilds accredited courses will help you gain recognition for your existing skills by supporting you to achieve a nationally recognised qualification in independent advocacy. The units will also help you to reflect on your practice and learn new skills so that you can be confident you are delivering the very best advocacy support.

    For further information and to book places, please see attached flyer and visit our website at: www.advocacytraining.org.uk.

    (Posted on 2009-03-19 09:14:00 by Kate Mercer Training)

  53. Cool Disco for Adults with Learning Disabilities

    The Concert Square disco is in The Lime Kiln (Lloyds Bar) Fleet street/Concert Square. It will run every Tuesday from 12 noon untill 3pm.

    It's aim is to give people with learning disabilities a chance to experience a top club environment with lasers, smoke machines and a 6ft Disco ball.

    We also run Bingo and a pub quiz.

    The disco is for non profit and provides paid employment and training for 9 people with leaning disabilities.

    initially we were established in Lee Valley millennium centre. Normally we would get 60 -70 people in through the door and the hope is with moving to a more central location we may be able to double that. This will give us a chance to offer more employment opportunities and hopefully put on live music regularly.

    The Venue is Wheelchair accessible and has a disabled toilet. It is licensed to hold over 800 people.

    Parking is available for blue badge holders on fleet street.

    Drinks start at 30p for a glass of cordial and a selection of meals are available at 2.99.

    (Posted on 2009-02-23 16:14:00 by Valerie)

  54. Response from 10 Downing Street to PAT petition.

    PAT parents signed a petition asking the Prime Minister to "Make SEN StatementsCompulsory after diagnosis" The Prime Minister's Office has responded to that petition and you can viewit here: http://www.number10.gov.uk/Page18051 Prime Minister's Office

    Petition information can be found at - http://petitions.number10.gov.uk/SENCHILDREN/

    (Posted on 2009-02-05 20:24:00 by PAT Trustees)

  55. Source: Department for Work and Pensions (DWP),03/02/2009

    Disabled people will have the opportunity to take their case to the UN if they feel their rights have been breached, Jonathan Shaw, Minister for Disabled People said today.

    Announcing that the UK Government has committed to signing the Optional Protocol to the UN Convention on Rights of Disabled People, Mr Shaw said: "This is further demonstration of our commitment to the UN Convention on the Rights of Disabled People, and to the principle of ensuring that disabled people can enjoy their human rights on an equal basis with non-disabled people."

    The Convention itself reaffirms that disabled people have - and should be able to enjoy - their human rights on an equal basis with non-disabled people. The Optional Protocol builds on this by establishing two additional procedures in respect of implementation and monitoring of the Convention. This includes an avenue that will enable individuals, who feel their rights have been breached, to bring petitions to the UN Committee, set up to monitor implementation of the Convention.

    The UK signed the UN Convention itself on the first day that it was able to do so - on 30 March 2007. Since then it has been considering the Optional Protocol in the light of work towards ratification of the Convention itself.

    (Posted on 2009-02-05 12:52:00 by 1cheerfulman)

  56. Season's Greetings & Best Wishes for the New Year!

    Valerie Todd, Catherine Taylor, Sheila McCoy, Liz Taylor and Larry Gardiner would like to send our thanks, appreciations and seasons greetings to parents and PAT supporters everywhere!

    It's time to celebrate our achievements and to rest, relax and enjoy time with our families. A great deal of good work has been completed, much more still remains to be done; nothing would be possible without your commitment and support.

    THANK YOU VERY MUCH!

    (Posted on 2008-12-17 08:26:00 by PAT Trustees)

  57. New Petition - Please sign now!

    Please ask the Prime Minister to ratify the UN Convention on Rights of Persons with Disabilities with the inclusion of his Government's need for reservations to its Article 24 Education.

    Please support Rescare - this is another great opportunity to show unity of purpose. More details from Richard S Jackson MBE of RESCARE - Deadline to sign up by: 31 January 2009.

    http://petitions.pm.gov.uk/Respecialschools

    (Posted on 2008-10-17 18:24:00 by 1cheerfulman)

  58. Response from 10 Downing Street

    PAT parents signed a petition asking the Prime Minister to "review the Special Needs Provision and the post code lottery that currently exists between different Local Education Authorities.

    All Local Education Authoritiesshould be made to ensure the parent's wishes and child's needs come beforeany financial considerations."

    The Prime Minister's Office has responded to that petition and you can view it here: http://www.number10.gov.uk/Page17050

    Prime Minister's Office Petition information - http://petitions.pm.gov.uk/LEAfight/

    (Posted on 2008-10-05 12:41:00 by 1cheerfulman)

  59. Dear PAT Parents,

    Every year, the leaders of the world's eight most rich and powerful countries (known as the G8) meet to discuss global issues. It's only a few weeks to go before this year's G8 Summit in Japan, so we're concentrating our efforts to make sure one thing is at the top of their agenda – tackling poverty. The G8 have the power to make a massive difference, and your actions at the 2005 Summit in Scotland led to the announcement of a raft of measures to tackle poverty.

    Send your wish to the G8, demand action now

    Despite this the G8 are now taking steps backwards. The 2007 Summit was a master class of heel-dragging – the G8 are falling well short of delivering on what they’ve promised. Oxfam has joined forces with the Global Call to Action Against Poverty – the world’s largest alliance of people calling for an end to poverty and inequality – to start a worldwide demand for action. This year’s Summit coincides with the famous Japanese Tanabata festival, where people tie wishes for the future to bamboo trees. Select your wish on our virtual tree, and we'll let world leaders know you want to see action now to end poverty.

    Send your wish to the G8, demand action now

    Broken G8 promises mean lives lost and continued poverty for millions, so please join us now.

    Karina Brisby,

    Oxfam Interactive Campaigns Manager.

    (Posted on 2008-06-21 18:00:00 by Karina Brisby)

  60. News story: 'Disabled children 'may be let down by devolved NHS'

    (Posted on 2008-06-21 17:55:00 by Kate Williams)

  61. Dear Larry,

    Every Disabled Child Matters supports the Learning Disability Coalition - a campaign fighting for better funding for services for adults with a learning disability. The Government is currently reviewing the future of the social care system. Understandably much of the focus has been on care for older people. But the Coalition wants to make sure that the needs of people with a learning disability are not forgotten. Please help the coalition and write to your MP. Click here to take action!

    As always, if you have any questions, please do get in touch with one of the campaign team.

    (Posted on 2008-06-21 17:52:00 by Pamela Shaw)

*

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