We have set out this statement of policy to commit ourselves to building a model of best practice. We may not be able to deliver all of the policy right now but we are determined to keep working toward these goals and standards.
The Parent Advocates Together (PAT) vision is for every parent of a disabled child or children with additional needs to have equal rights to choice, opportunity and respect, with the support they need to be treated as a full care partner by everyone and by every authority or agency.
PAT is a small parent-led organisation in the voluntary sector representing parents and their families. PAT does not currently have paid employees. PAT is run entirely by parent volunteers for the benefit of other parents. PAT offers a variety of advocacy approaches and services to enable parents to make informed choices, to express their views and to have full access to their rights, both for themselves and for their families.
PAT seeks to empower parents to advocate for themselves, for each other and on behalf of our constituency of families with disabled children. PAT is supported by an advisory panel comprising professionals with experience as advocates. PAT volunteers are managed by the PAT management committee and trustees and by a volunteer work group co-ordinator. PAT volunteer advocates agree to work according to an Advocacy Charter, the Advocacy Code of Practice and the Advocacy Quality Standards. The Advocacy Charter sets out principles for:- CLARITY OF PURPOSE; PUTTING PEOPLE FIRST; INDEPENDENCE; SUPPORTING ADVOCATES; ACCOUNTABILITY; ACCESSIBILITY; EMPOWERMENT; CONFIDENTIALITY; COMPLAINTS; and EQUAL OPPORTUNITY.
PAT advocates sometimes work on a one to one basis and sometimes we work with groups of people. Volunteers are often involved in supporting self-advocacy groups.
Typically, we work with an individual on a one to one basis to support them to resolve difficulties or problems, to enable them to take an action, during a change in their life, or whenever there is an identified issue and a point of closure. PAT advocates may have individual partnerships with parents on a long or short term basis.
A long term advocacy partnership focuses on supporting someone where it is difficult to identify their choices and the emphasis is identifying someone’s preferences by knowing them well and speaking up for them. A short term advocacy partnership is supporting someone during a life change where there is a specific issue that people are asking for help with. We match people together very carefully dependent upon the advocacy issue. Volunteers advocate for someone from their local community.PAT advocates also facilitate regular parent support groups, parent consultations, parent participation programmes and capacity building activities for parents. This is generally group work, where people have a chance to talk about issues and to develop mutual self-help and solidarity.
PAT support groups and work groups frequently invite advisors and service delivery professionals as participants so as to provide opportunities for parents to discuss their own issues with someone who is informed about policy and practitioner issues, who can offer impartial assistance and who is independent either of the council or the NHS primary care trust.
PAT advocates also work with Sefton Metropolitan Borough Council, with Sefton NHS Primary Care Trust and with other service delivery organisations to ensure that people who access these services are happy with service quality, are happy with any proposed changes to the services they receive and in order to ensure that parents have an opportunity to influence all decisions affecting them or their families in accordance with the principles of the Every Disabled Child Matters disabled children’s charter.
PAT advocates also support self-advocacy groups to build their capacity and effectiveness as change agents, to act as a pressure group and to campaign around an agreed platform.
PAT is committed to the following:
PAT will not introduce volunteers to replace paid staff.PAT volunteers to have a defined place in the structure of the organisation.PAT volunteers are treated equally as part of our team.PAT recognises the individual skills each person brings to the organisation.PAT works to ensure that volunteers feel supported and valued in their role through a comprehensive induction to advocacy, through peer supervision groups and with a named management committee member as a point of contact.PAT encourages volunteers to develop and build on existing skills and knowledge through sharing good practice within PAT advocacy scheme and through regular training opportunities.HM Revenue and Customs (formerly the Inland Revenue) sets a rate for the reimbursement of driving expenses. They are set at a level to take into account depreciation and other running costs as well as fuel.
HM Revenue and Customs approved mileage rates 2006-2007.
Cars and vans – 40p per mile for the first 10,000 miles, 25p per mile over 10,000.Motorcycles – 24p per mile.Bicycles – 20p per mile.Reimbursement of lunch expenses and expenditure incurred in the course of working as a volunteer is paid on the production of recipts, bills and invoices at cost. This is allowed by HM Revenue and Customs.
Expenses do not constitute a payment, so volunteers can receive reimbursement of reasonable out-of-pocket expenses (any expenses that they have incurred because they are volunteering) without their tax credits or benefits being affected.
All benefits rulings agree that voluntary work is work for a not-for-profit organisation, or work for someone who is not a member of your family, where only reasonable expenses are paid.
People on JSA can do as much voluntary work as they want as long as they remain available for and are actively seeking work. This will mean that they will have to show that they are looking for work and applying for jobs where appropriate. As an organisation you will have to give your volunteers some flexibility, as they will need to visit the Job Centre for meetings and to sign on, and will need to attend interviews when they come up. If an individual is volunteering, then they are entitled to 48 hours’ notice if they are asked to attend an interview, and a week’s notice before starting work. These are concessions to the 24 hour notice normally allowed.
Volunteering should not affect someone’s Income Support as long as they are not receiving any money other than reimbursement of expenses.
There is a lot of confusion over Incapacity Benefit because there used to be a rule that individuals in receipt of the benefit could only volunteer for 16 hours a week. This rule no longer applies, although many people are still being told that it does. If you are in receipt of Incapacity Benefit then you can volunteer for as long as you want. People often worry that starting to volunteer will automatically trigger an investigation into their need to claim Incapacity Benefit, but in fact this very rarely happens. Occasionally there is also some confusion about volunteering and ‘permitted work’ (similar to the old ‘therapeutic earnings’). The permitted work rule applies only to paid work and should not affect volunteers. Claimants should be entitled to volunteer without it being recognised as permitted work.
DLA is an allowance paid in acknowledgement of the fact that life for someone with a disability may be more expensive – for instance, someone with mobility problems may be reliant on taxis. Volunteering will not affect whether an individual receives this benefit or not.